It’s only episode one and I am already over talking about Lyme disease versus Persistant/Post Treatment Lyme Disease verus the made up diagnosis of “Chronic Lyme.” It’s going to be a long season. But let’s look at Yolanda’s blog which was in the batch of blogs turned in first.
From here, Yolanda’s Blog will be in black italic and I will respond in purple.
Becoming chronically ill has definitely given me a greater understanding of human nature, and I’ve learned to accept people’s lack of long-term compassion for others while they live their busy lives.
On the other hand, Yo’s husband is constantly on the road and working and still at the top of his game. Should he drop everything indefinitely? I have seen him with her in hospitals all over the world. The were married just over a year when this started. I am with the camp that says that this was a business arrangement of sorts. There is a difference between having compassion, and giving up the rest of your life for someone who has an illness that has not been properly diagnosed. I don’t think they have the sort of relationship where that would be a reasonable explanation.
I have gone from being an outspoken multi-tasking social butterfly to a hostage of my debilitating disease. I might only be a shell of the woman I used to be, but my heart is still the same, and even though I can only do life one day at a time, I am at peace and have surrendered to my new normal–for now.
I think many of us can relate to this. I think perimenopause/menopause could be the issue. And if it is, I hate to break the news but there is nothing much to do. Doctors, even female ones will tell you it is a ten year sentence that you will eventually survive. And you won’t get much understanding from women who do not have major issues with “the change.”
I’d be lying if I said it’s not hard to be judged by the way I look. Its almost like you have to show scars and broken bones in order to be warranted understanding. Does it count that even though we dont “look” great, that we show up..? It’s tempting to be distracted by negativity, but I choose to stay focused on the light at the end of the tunnel and not let anything interrupt my healing process. Being mentally and neurologically compromised for so long has presented me with life’s biggest challenge, and I need all of ME to fight this till the end.
I wonder who wrote this blog? It sure sounds like Yo. I do get the frustration of not having visible scars and broken bones. I also get why she would cling to the “Chronic Lyme diagnosis” because it is frustrating not to know why you have suddenly “changed.” Then again, they do call it “the change” and pretty much all of her symptoms fall under that. Add too many whackdoodle health therapies and you could exacerbate the problem.
Bless the hearts of my fellow Housewives! May neither they, nor their families, ever have to face such illness, because it is at that time when we learn and realize what really matters.
Ken Todd is right, I dont look good. I definetly look ill…but that’s because I AM! I miss the days of what now feels like my old LIFE: the hair, the makeup, a sexy dress, but most of all being in a healthy body. At the end of the day, I now value to be “real,” not to be “perfect.” I still like to believe though that no beauty shines brighter than that of a good heart.
I hate the fact that people (including me, to an extent) are questioning her illness. When you feel this badly, people discounting your illness or thinking you are over playing it for sympathy or because you just don’t want to do something is hard. I my resolve to defend Yolanda only waivers because of the inclusion of her children in her illness. There are many other things seem contradictory. On the other hand, I understand her rallying to go to NYC and being present for her daughter’s modeling events on the limited basis that she has. This is all very sad.
If Lyme wasn’t such a controversial disease, I’d probably have chosen to deal with my journey in a more private manner, but the amount of suffering that goes on behind closed doors all over the world is unconscionable, and I feel it’s my duty to be a voice for those who can’t be heard. I want to shine a light on a disease that so many know so little about.
Lyme disease is not controversial at all. CHRONIC LYME is “controversial” in that it DOES NOT EXIST. This is where she loses me. Now that she was honored at the Lyme function in NYC, she is calling it Lyme. Which she does not have.
I wish my message was more fun and glamorous than this, but I accept that these are the cards life has dealt me. I’m extremely fortunate and grateful to have had the opportunity to travel to 11 countries, five states, and see 100+doctors, but the truth is that even though I have made great strides in the past six months, I have not found a cure yet.
I find it very hard to believe that 100+ doctors especially since at least some are holistic would all agree on any diagnosis, let alone “Chronic Lyme.”
It’s hard to comprehend that we live in the best country in the world, yet people are left to struggle with this silent killer on their own, especcially considering the fact that the medical community honored Dr.Burgdorfer’s discovery in 1982, of the spirochete “Borellia Burgdorferi.” Now, 33 years later, we are still trying to figure this out?
I did a quick search and according to this CDC story, a total of SEVEN people have died from Lyme disease since 1985. That was due to the tick bite being near the heart and the bacteria entering. (Lyme Carditis). They also say this about “Chronic Lyme” ” Lyme disease is an infection caused by the bacterium Borrelia burgdorferi. In the majority of cases, it is successfully treated with oral antibiotics. Physicians sometimes describe patients who have non-specific symptoms (like fatigue, pain, and joint and muscle aches) after the treatment of Lyme disease as having post-treatment Lyme disease syndrome(http://www.cdc.gov/lyme/postlds/index.html) (PTLDS) or post Lyme disease syndrome (PLDS).
The term “chronic Lyme disease” (CLD) has been used to describe people with different illnesses. While the term is sometimes used to describe illness in patients with Lyme disease, in many occasions it has been used to describe symptoms in people who have no evidence of a current or past infection with B. burgdorferi (Marques, 2008). Because of the confusion in how the term CLD is employed, experts in this field do not support its use (Feder et al., 2007).
Lyme disease is six times more prevalent than AIDS ever was in the early 80s. The globe united beautifully with one voice to combat HIV, so I pray every day that we will come together and find a cure for Lyme, affordable for all.
I find this comparison appalling. and with no basis in fact. Lyme disease is entirely curable with a dose of longterm antibiotics in the VAST majority of cases. And YOLANDA DOES NOT HAVE LYME DISEASE. It is absolutely NOTHING like AIDS in the early 80s.